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Guillain-Barré & Associated

Inflammatory Neuropathies

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01529469910
1800 806152
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CHARITY INFORMATION FOR PRESS RELEASE

 

Version 1 - word count 87 (fewer than 100 words)

Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. For further information visit www.gaincharity.org.uk

 

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Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system. It causes the nerves in the arms and legs to become inflamed and stop working, usually leading to temporary paralysis.

An estimated 1-2 people per 100,000 are affected by GBS annually in the UK with a further 0.5-1 per 100,000 being diagnosed with CIDP, which is a similar but longer-lasting condition.  About 80% of those with GBS will make a good recovery, but unfortunately between 5-10% of people will not survive and the other 10-15% may experience long term residual effects ranging from limited mobility or dexterity, to life-long dependency on a wheelchair. GAIN is the only national organisation in the UK and Republic of Ireland dedicated to supporting people affected by these conditions.

What we do:

•           Help people understand and manage GBS, CIDP and the associated variants

•           Promote and facilitate both clinical and non-clinical research

•           Raise awareness of the charity and conditions

GAIN receives no government funding, relying on the generosity of the public to support our work.

Further information can be found at www.gaincharity.org.uk

  

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Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barré syndrome, also known as AIDP, is an acute auto-immune condition affecting the peripheral nerves, in which the body’s immune system attacks the myelin sheath (insulating coating of the nerves). This leads to the short-circuiting of the nerve signals which causes sudden weakness resulting in paralysis and a loss of sensation, often but not always with severe pain. The worst degree of weakness is usually reached within 4 weeks and always within 6 weeks. Recovery can take a few weeks or many months.

Some patients develop a similar but longer-lasting condition called CIDP. It is possible to recover from CIDP, but many will be affected for the rest of their lives and will require ongoing treatment. 

Every year in the UK, around 1-2 people per 100,000 are diagnosed with an acute form of GBS and a further 0.5-1 people per 100,000 being diagnosed with a chronic variant such as CIDP. These conditions are neither hereditary nor contagious, nor are they age or gender-related.

About 80% of those with GBS will make a good recovery, but sadly between 5-10% of people will not survive and the other 10-15% may experience long term residual effects ranging from limited mobility or dexterity, to life-long dependency on a wheelchair. 

GAIN is the only national organisation in the UK and Republic of Ireland dedicated to supporting people affected by these conditions.

What we do: 

•           Help people understand and manage GBS, CIDP and the associated variants 

•           Promote and facilitate both clinical and non-clinical research 

•           Raise awareness of the charity and conditions 

GAIN receives no government funding, relying on the generosity of the public to support our work.

Further information can be found at www.gaincharity.org.uk 

Guillain-Barré & Associated Inflammatory Neuropathies (GAIN) is a registered charity, number 1154843 & SCO39900