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Guillain-Barré & Associated

Inflammatory Neuropathies

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1800 806152
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Useful Links

Websites and/or phone numbers

Website links policy 

 

Age UK

http://www.ageuk.org.uk/

Helpline 0800 169 6565

Information, advice and support for older people

Carers Trust

http://www.carers.org/

Tel: 0844 800 4361

Support and services for carers

Citizens Advice Bureau

http://www.citizensadvice.org.uk/

Tel. (Wales) 08444 77 20 20

Tel. (England) 08444 111 444

Free independent and confidential advice including fact sheets, sample letters and budget calculator

CAB self-help website

http://www.adviceguide.org.uk/

 

Cochrane Library

http://thecochranelibrary.com/

Independent high quality evidence for health care decision making

Department Health IVIg

http://www.ivig.nhs.uk/

A resource to healthcare providers to understand the Demand Management Programme for Immunoglobulin and access guidance and materials to ensure its effective implementation

Direct Gov

https://www.gov.uk/

Information on benefits, DVLA etc

Disabled Living Foundation

http://www.dlf.org.uk

Helpline 0300 999 0004

Impartial advice, information and training on daily living aids

Expert Patients Programme

http://www.expertpatients.co.uk 

http://www.wales.nhs.uk/sites3/home.cfm?orgid=537 

A self-management programme for anyone over 18 with a long term health condition to help you learn

Euans Guide

http://www.euansguide.com/about-us/

Listings and review website to help disabled people find accessible venues

Listening Books

www.listening-books.org.uk

A service for those whose illness or disability makes it difficult or impossible to hold or concentrate on reading a book

Money Advice Service

https://www.moneyadviceservice.org.uk/en/

Not for profit government organisation created solely to help people with their finances

Neuro News

http://www.neuro-news.co.uk

Community hub for information on neurological conditions

Neurological Alliance

http://www.neural.org.uk/

The only collective voice for more than 70 national and regional organisations working together to make life better for 10 million children, young people and adults in England with a neurological condition

NHS Complaints Advocacy

http://nhscomplaintsadvocacy.org

The NHS Complaints Advocacy Service is a free and independent service that can help you make a complaint about a National Health Service (NHS).

Pubmed

http://www.ncbi.nlm.nih.gov/pubmed/

Citations for biomedical literature from MEDLINE, life science journals, and online books

Rare Disease UK

https://www.raredisease.org.uk/media/1588/the-rare-reality-an-insight-into-the-patient-and-family-experience-of-rare-disease.pdf

The National Alliance for people with rare diseases & all who support them

Scope/DIAL

http://www.scope.org.uk/dial

Local disability information and advice

Turn2us

http://www.turn2us.org.uk/

Helping people to access welfare benefits, charitable grants and other financial help